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ATHENS, Ohio A four-year study of people with HIV and AIDS who live in rural America
is painting a picture of isolation, depression and thoughts of suicide. Early findings from
the project reveal that most participants feel cut off from support services, have seriously
limited access to health care and are living in poverty issues researchers say have led
many to consider suicide.
In fact, preliminary findings from 201 people enrolled to date in the Ohio University
study show that 38 percent of them say they have thought about committing suicide; 6 percent
said they would have killed themselves if given the chance.
"That's one out of every 16 people. I don't think that's a trivial number or one we
should take lightly," said Timothy Heckman, an associate professor of psychology in the
university's College of Arts and Sciences. "That rate is comparable to, if not higher than,
those you would find in urban areas."
The work was presented in late March at the Annual Conference of the Society of Behavioral
Medicine in Seattle and is among the first findings from a project researchers hope will
draw attention to AIDS and HIV in rural America. The study, funded by a $1.3 million grant
from the National Institute of Mental Health, ultimately will include at least 360 people
living in 11 states. The research was designed to collect data on a population largely
overlooked by AIDS researchers, and to test the feasibility of delivering badly needed
support services via telephone to individuals who don't have access to the types of programs
available in urban centers.
A life in rural America for someone with HIV or AIDS often means isolation from support
networks and health care services, Heckman said. The close-knit nature of rural life can
make it difficult to keep an HIV diagnosis confidential. All of these things can cause
depression which, in some cases, can lead to suicidal thoughts.
Still, Heckman said he was surprised at the early data. Particularly alarming is the
lack of a demographic profile for those individuals who had suicidal thoughts. Of the 201
people in the recently presented study, 152 were men, 49 were women, 74 percent were white
and 46 percent had been diagnosed with AIDS.
But people with AIDS were no more likely to be suicidal than people living with HIV, the
virus that causes AIDS. Whites were as prone to depression as people of color. And women
were just as vulnerable to suicidal thoughts as men.
"My first thought is that we're not going to be able to use demographic groups to identify
those individuals at greatest risk for suicide," he said. "It's based more on psychosocial
issues such as social isolation and ways of coping."
The study, which Heckman began in 1999 while a faculty member at the Medical College
of Wisconsin, is exploring these issues, with the hope of devising interventions to address
them. Since coming to Ohio University in July 2000, Heckman has continued those efforts,
including exploring the possibility of delivering support services via a telephone-based
support group he created called Project Connect.
Project Connect brings together six rural residents living with HIV or AIDS for a
conversation monitored by two mental health practitioners. The idea is to offer support
services, advice on how to access social services and effective coping strategies all over
the telephone. The network mimics an in-person support group setting that isn't available
in most rural areas of the country.
The phone network is ongoing in Ohio, Rhode Island, Pennsylvania, Virginia, West
Virginia, Michigan, Wisconsin, Montana and Alaska. The researchers are hoping to enroll at
least 360 people; 270 are registered now. To be included, participants must be at least 18
years old, have HIV or AIDS and live in a town with a population of 50,000 or fewer that
is at least 20 miles from a city of 100,000 or more.
But researchers now are expanding their focus to include a parallel project on suicide
among these populations, prompted by the high rate of suicidal thoughts revealed in their
preliminary data analyses. With support from a new one-year, $140,000 grant from NIMH,
researchers are exploring issues that lead individuals to contemplate suicide.
Researchers are working with AIDS services organizations in Indiana and New York on this
project, two states not included in the original study of Project Connect. So far, 85 people
have been enrolled in the suicide study. "I think we'll learn a lot more about suicide
in this study," Heckman said. "We can use these data to conceptualize interventions that
might provide assistance to this vulnerable group."
Co-authors of the recently presented research include Jeffrey G. Miller and Seth C.
Kalichman of the Medical College of Wisconsin and Arlene Kochman of Yale University School
of Medicine. |